As I’ve shared before, I’ve been off work on short-term disability since March due to break-through seizures. I can’t tell if my epilepsy is resistant to medication or if I’m just having the most horrible, inconvenient side effects possible before we can tell if the meds would be helpful, but either way, I’m kind of screwed. I’ve been seeing a plethora of doctors and specialists– neurologists, psychiatrists (a lot of the medications used to treat seizure disorders are also used to treat psychiatric conditions like bipolar disorder), my family doc to help coordinate it all, etc, etc, etc and now the children are home from school, so I’m trying to juggle their summer schedule and keep their lives as normal-ish as possible.
We are revolting children…
Living in revolting times.
We sing revolting songs
Using revolting rhymes.
We’ll be revolting children,
‘Til our revolting’s done,
And we’ll have the Trunchbull bolting.
Stuck in traffic, trying to get Katie to choir rehearsal while competing with the rest of the city of Pittsburgh who were on their way to the Pen’s Stanley Cup victory parade, we had an interesting chat about the meaning of Matilda’s “Revolting Children.”
If you know me even a little bit through my blog, my Facebook page, or in real life, you know how important Matilda the Musical has been to me. I saw it on Broadway on my my first solo trip in twenty years (you can see it too, but hurry because it closes January 1, 2017!), and it was amazingly magical. We were lucky enough to have the touring company come here to the ‘Burgh, and I got to take Katie Grace to see it for her birthday AND went again with a friend. It might be coming to your city as well! You can check out the tour site here. All the children love the music and sing it pretty regularly, and we enjoy comparing and contrasting the Broadway and West End cast recordings. You know, as you do. So, it made a lot of sense that our very first musical of the summer was Matilda the Musical.
So, I’m still home. I’m facing the reality that life as I knew it might be a bygone thing, and I’m learning to find my peace with it. My therapist– and let’s face it, when you’re going through this sort of life upheaval, it’s really to your benefit to have a therapist– suggested, when I told her how much I miss writing and blogging that I channel that energy into writing about life with epilepsy instead. I thought about it, but then decided I really didn’t want to. I don’t like living with epilepsy and I certainly don’t want to write about it. Instead, I’ve decided to go back to blogging and writing about my passion– play-based early childhood education. At first, I wondered if I really could. I’m not homeschooling. I’m not teaching. I’ll have my children for the summer, but then they’re back to school. Can I really still blog about these things, or would I be a fraud?